{"id":1725,"date":"2019-03-16T18:23:03","date_gmt":"2019-03-16T18:23:03","guid":{"rendered":"http:\/\/cf-coach.ch\/?page_id=1725"},"modified":"2019-07-13T13:36:40","modified_gmt":"2019-07-13T13:36:40","slug":"ein-kind-mit-cf-haben","status":"publish","type":"page","link":"https:\/\/cf-coach.ch\/en\/ein-kind-mit-cf-haben\/","title":{"rendered":"Having a child with CF"},"content":{"rendered":"
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Having a child with CF<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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You recently became a proud parent of a child? Wow, congratulations! The feeling of being a mother or a father must be incredible. Have you also learned that your child has CF? Maybe that was a shock for you. Maybe you already know a lot about it, maybe not. CF doesn't sound nice at first. But there are definitely beautiful sides. I would like to give tips from my point of view, but also from the point of view of my parents.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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What does that mean for us?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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You for sure have already informed yourself a little what CF is exactly. If not, you can find a lot of useful information about it on the www.cfch.ch page. In addition, your hospital will certainly give you more detailed information and refer you to the nearest CF clinic. For the first time, your child is the same child, whether it has CF or not. CF has many different courses. This cannot really be predicted in advance. In the internet you can find a lot of information, good as well as bad. Do not believe everything what you read there! CF certainly has its pitfalls, but that does not mean that our life must always be bad.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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What to expect?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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This question is very difficult to answer. Certainly a CF child needs more attention and care, especially at a young age. There are certain things to consider (e.g. hygiene regulations, places with many germs, therapy, etc.). Below I would like to tell you a little bit more about them. You will also find a report of my parents below. They tell a little about the challenge they had with me. You are welcome to contact me if you would like to contact someone who has CF. My parents are also contact persons for parents with CF children and will be happy to give you more information. You are not alone!\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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What does that mean for us?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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You for sure have already informed yourself a little what CF is exactly. If not, you can find a lot of useful information about it on the www.cfch.ch page. In addition, your hospital will certainly give you more detailed information and refer you to the nearest CF clinic. For the first time, your child is the same child, whether it has CF or not. CF has many different courses. This cannot really be predicted in advance. In the internet you can find a lot of information, good as well as bad. Do not believe everything what you read there! CF certainly has its pitfalls, but that does not mean that our life must always be bad.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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What to expect?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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This question is very difficult to answer. Certainly a CF child needs more attention and care, especially at a young age. There are certain things to consider (e.g. hygiene regulations, places with many germs, therapy, etc.). Below I would like to tell you a little bit more about them. You will also find a report of my parents below. They tell a little about the challenge they had with me. You are welcome to contact me if you would like to contact someone who has CF. My parents are also contact persons for parents with CF children and will be happy to give you more information. You are not alone!\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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What's there to keep in mind?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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First, be proud of your child, whether it has CF or not. For many of us CF sufferers, the disease has learned a lot of positive things in life. Of course there are times when infections burden us and we are in hospital. Nevertheless, life is absolutely worth living. Enclosed I would like to list a few points which are important from my point of view:<\/p>